MONITOR O2 SATURATION METICULOUSLY  EVERY WEEK AND IF DISTRESSED ANY TIME
KEEP SATURATION ABOVE 70% 
 EXCLUDE OTHER CONGENITAL MALFORMATIONS
SKELETAL SURVEY
MSCT CARDIAC ANGIOGRAPHY OR DIAGNOSTIC CATHETERIZATION (WHAT'S AVAILABLE )
CBC EVERY MONTH TO CHECK HEMATOCRIT VALUE IF ABOVE 65 %FOR PARTIAL EXCHANGE TRANSFUSION